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 tanuja (Guest)
my brother is suffering with backers muscular dystrophy from birth onwards,now he is 15yrs old,he was suddenly falling down unknownly,he is having the history of 2nd degree consanguity .urgent plz give me imediate response
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Replied on Tuesday, February 8, 2011 10:12 AM
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Dear Tanuja, Beckers Muscular Dystrophy [BMD] is the less severity form of DMD. Just start with proper physiotherapy and be careful on weight management. Give him the diet which wont put on weight. Tell him not to sit continuously. He must walk for 5 min. for every one hour. Physiotherapy must be done daily by a therapist who knows about BMD.
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Replied on Friday, March 23, 2012 9:14 AM
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Hi,
Are we all aware about the Santhera Pharmaceuticals drug Idebenone for curing DMD. Phase-111 double blind trials are on for this drug and there is a webinar on 3rd March for update of this trial. Need to have a close tab on researches and also do not write off the option of stem cell therapy at all. This a good ray of hope.
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Replied on Monday, February 28, 2011 11:24 AM
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Hi, is it valid drug for my 14 Years old Son?
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Replied on Tuesday, May 17, 2011 7:51 AM
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My son is suffering from DMD from last year. He is now 4 and half years. Please anyone guide me regarding the nutritional diet?
Waiting for your quick reply.
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Replied on Monday, March 14, 2011 1:22 AM
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You can start with Creatine Monohydrate.
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Replied on Tuesday, March 29, 2011 9:16 PM
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Gaurav_Bangar (Guest)
creatine is used for body builders dn hw cn we use it for a smal kida suffering fron dat disease
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Replied on Wednesday, August 31, 2011 11:57 PM
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Give him more of fresh vegetables, fruits, greens, sprouted green gram and less of carbohydrate. This will give him strength but won't put on heavy weight. Weight management is very important for DMD children. Physiotherapy by a therapist, who knows about DMD must be given daily.
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Replied on Friday, March 23, 2012 7:27 AM
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hiii this is veeru from hyderabad.iam suffering from muscular dystrophy since 11years.now a days lot of people were suffering with this disease.so,doctors please try to find medicine for us.otherwise we have to die
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Replied on Saturday, May 21, 2011 1:29 AM
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As I informed earlier we are launching DMD test using MLPA that would screen for all 79 exons of DMD genes for deletions and duplications. You can get it diagnosed by contacting b.venkat@sandor.co.in
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Replied on Wednesday, September 7, 2011 2:15 AM
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Dear Sir,
My cousin suffering DMD since 7 years old. Now he 11. We are from Bangladesh. We are ready to come and met with you if there is any treatment or any medicine you will advise.
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Replied on Sunday, May 29, 2011 6:38 AM
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