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Muscular Dystrophy / Duchenne Muscular Dystrophy

Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Fri, 30 Mar 2012

Keep your child away from any infection like cold, fever, etc., minute infection may lead to pnemonia or lung infection, which will make the child's condition still worse. My prayers for your son and ...

Muscular Dystrophy / Duchenne Muscular Dystrophy

Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Fri, 30 Mar 2012

Dear Sharon, For muscle biopsy, the patient can be directed to NIMHANS Bangalore. Ask them to carry their ration card, income certificate if they come under BPL. They have stay there atleast for a day...

Muscular Dystrophy / Duchenne Muscular Dystrophy

Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Fri, 30 Mar 2012

DMD will not affect his mental health. Only CMD Congenital Muscular Dystrophy affects child's mental health. DMD children's IQ level is very high.

Muscular Dystrophy / Duchenne Muscular Dystrophy

Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Thu, 29 Mar 2012

Dear Sinoby, It is difficult to digest having a son with DMD. Your son is just 5 years. Give him proper physiotherapy exclusively designed for DMD children. Hopes are there to get the medicine within ...

Muscular Dystrophy / Duchenne Muscular Dystrophy

Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Tue, 27 Mar 2012

Mr Deepak, Omino cartil what you are giving for your son is cortico steroid tablet whose generic name is Prednisone. This tablet is being used in developed countaries for DMD children whose side effec...

Muscular Dystrophy / Duchenne Muscular Dystrophy

Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Tue, 27 Mar 2012

Dear guest, What you said is right, 'u see ur child slowly going out of ur hands'. We had undergone this trauma and lost our only child for this disease. But still we work to save this community. Musc...

Muscular Dystrophy / Duchenne Muscular Dystrophy

Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Fri, 23 Mar 2012

Dear Arvind, We are dealing with hundreds of DMD children. We have cases, of broken ball and socket knee joint just because of the traction given at Tirunelveli treatment. Now the child is living with...

Muscular Dystrophy / Duchenne Muscular Dystrophy

Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Fri, 23 Mar 2012

Dear Tanuja, Beckers Muscular Dystrophy [BMD] is the less severity form of DMD. Just start with proper physiotherapy and be careful on weight management. Give him the diet which wont put on weight. Te...

Muscular Dystrophy / Duchenne Muscular Dystrophy

Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Fri, 23 Mar 2012

Give him more of fresh vegetables, fruits, greens, sprouted green gram and less of carbohydrate. This will give him strength but won't put on heavy weight. Weight management is very important for DMD ...

Treatment of Duchenne Muscular Dystrophy may be Possible Via Molecular Therapy

Posted in General Support group on Fri, 23 Mar 2012

Dear Sushma, Chances are very less regarding the improvement. Unless some changes occur internally like gene therapy or stemcell therapy from a reliable source, you cannot expect any improvement. Pra...




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