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Muscular Dystrophy / Duchenne Muscular Dystrophy
Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Fri, 30 Mar 2012
Keep your child away from any infection like cold, fever, etc., minute infection may lead to pnemonia or lung infection, which will make the child's condition still worse. My prayers for your son and ...
Dear Sharon, For muscle biopsy, the patient can be directed to NIMHANS Bangalore. Ask them to carry their ration card, income certificate if they come under BPL. They have stay there atleast for a day...
DMD will not affect his mental health. Only CMD Congenital Muscular Dystrophy affects child's mental health. DMD children's IQ level is very high.
Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Thu, 29 Mar 2012
Dear Sinoby, It is difficult to digest having a son with DMD. Your son is just 5 years. Give him proper physiotherapy exclusively designed for DMD children. Hopes are there to get the medicine within ...
Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Tue, 27 Mar 2012
Mr Deepak, Omino cartil what you are giving for your son is cortico steroid tablet whose generic name is Prednisone. This tablet is being used in developed countaries for DMD children whose side effec...
Dear guest, What you said is right, 'u see ur child slowly going out of ur hands'. We had undergone this trauma and lost our only child for this disease. But still we work to save this community. Musc...
Posted in Muscular Dystrophy / Duchenne Muscular Dystrophy Support group on Fri, 23 Mar 2012
Dear Arvind, We are dealing with hundreds of DMD children. We have cases, of broken ball and socket knee joint just because of the traction given at Tirunelveli treatment. Now the child is living with...
Dear Tanuja, Beckers Muscular Dystrophy [BMD] is the less severity form of DMD. Just start with proper physiotherapy and be careful on weight management. Give him the diet which wont put on weight. Te...
Give him more of fresh vegetables, fruits, greens, sprouted green gram and less of carbohydrate. This will give him strength but won't put on heavy weight. Weight management is very important for DMD ...
Treatment of Duchenne Muscular Dystrophy may be Possible Via Molecular Therapy
Posted in General Support group on Fri, 23 Mar 2012
Dear Sushma, Chances are very less regarding the improvement. Unless some changes occur internally like gene therapy or stemcell therapy from a reliable source, you cannot expect any improvement. Pra...
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