Hi- female, late 30's. My own experience has led to a life of chronic overindulgence in masturbation which has sapped me of all my energy to do or want to do anything much. Orgasm totally kills my motivation to do anything. I use a TENS MACHINE - I put it on my back, legs and the sensation deflects from the clitoral pressure. I did end up using the machine "down there" however which I discovered was totally mind-blowing" but has made me ill from over stimulating my nerves. I have no kids - this might be a cause - like my body is screaming out for reproduction or something. OR I masturbate to relieve anxiety and pressure of general life. If you think about it alot of blokes masturbate ALOT and the clitoris is supposed to be like a mini penis. I am only satisfied once a clitoral orgasm has been achieved. Then I am as totally blissed out and don't have a care in the world. It is a highly addictive pleasure and its a cure to the psas. I get angry and bad tempered if I don't have a clitoral orgasm at least once every other day. I really want to find professional help but don't know where to begin. Anyway, try to put my TENS machine on as I've just had 3 orgasms and my back is killing me! Good luck everyone - I too am very interested in how Aimee got her "nerves re-syched" - it wouldn't surprise me if it involved some sort of electrical stimalation.

there is considerable suffering from this disorder.I am afraid to go anywhere just in case this might flair up.I think about this all the time and it ruins my day. When I get this feeling,masturbation can take up to one hour ahd even longer for any relief and still the feeeling comes back shortly there after. This is ruining my life and daily living. I try to just take it one day at a time and do alot of praying. Is this going to be forever

I have Regs and it totally sucks. I have had it since I was eleven at least. I think my baby sister has it too. She is 8. It hurts so bad all the time. I just found out by talking to my mothers best friend. I thought I was a sex addict. I told her what was going on and she saw a show on t.v. and we looked it up together. I am so grateful I found out. IM on lexapro and I masterbate once a week now. I did atleast 4 times a day since 7th grade. It still hurts and my stomach does but it is so much better. I tried my mothers antidepressant when I found out and it helped instantly. Same with my Lexapro. My lower back still hurts. Pgad ruined my life socialy I don't want to see my friends ever. High school i excluded myself dramatically. I was never sure why. But I can start my new life now that I know of this syndrome. And I am glad it is rare because It hurts so bad. It probably isn't as temendously rare as 400 women in the world. Those poor women just haven't found out what it was. If I wouldn't have talked to my friend I probably never would have found out. I didn't find out for nine years.

i think i might have this, i'm in my teens and constantly have this feeling like i'm restless, i can't sleep properly because of it, no normal physical activity gets rid of it, i don't know what it's connected to but it started when i went through my first menstraul cycle, is there anywhere i can get help or anyway of getting relief from the restless feeling.