This is one of the worst things!! I believe I currently suffer from it . .. when you urinate it's like you are having a mini orgasism!!!!

Please help. Does anyone know of doctors in the Midwest that are educated in this. I have suffered from this for the past 10-12 years following a surgery, and or a cathater that was placed in me from a hospitilazation.

I can not begin to tell you the mental and physical angush this has caused. American doctors have always sent me away saying that I needed mental help and that there was not a reason or explanation for my symptoms except a mental disorder. I am so angry, this has taken my love for work away and has made me believe I was being rapped by unseen forces. I really hope that one day we will find a solution, as I know now, I have lost everything over this condition.

This is out of date...PSAS has now actually been researched and there are various treatments: "Some internet sites, particularly in the USA, state that PGAD is a newly described disorder that is not yet fully understood or defined and is difficult to treat. This is unfortunate as it gives the impression that PGAD still is a rather mysterious disorder. But it is not. These websites are not up-dated with recent research. The studies of Prof. Waldinger have shown that ReGS, including PSAS or PGAD, is a well-described neurological disorder that can be treated with TENS and or medication (daily clonazepam, or oxazepam, or on-demand tramadol; local injection with bupivacaine 0.5% or bupivacaine 0.5% + 40 mg methylprednisolon).

Hello, My name is Jay a male...and when i saw the name "Steve"I was so shcoked, as i just discovered the name for PGAD but it seems "all women"...however, the owner of the website allowed me to join psas group usa allowed as she said there were some men. I"ve yet to find a one.
WHen i saw the name steve...in KC (I assume Kansis City), I was amazed. I have other physical ailments...Bone Disease, Surgery 1 year back for ileostomy w/SEVERE GLOBAL COLONIC INERTIA and have been on pain meds for years. Recently the pains meds stopped working and now, no matter how much pain meds I take, i cannot sleep...I cannot function I AM IMPRISONED WITHIN MY OWN BODY,and I thoght life was bad enough before, wthe ileosotmy, Narcotics for Avascuar Necrosis of Hips, Shoulders and knee...(nothing was ever this bad; now I'm I"m right back to having to have to cathertizing myself...can you imagine having to have to cath when you're "near orgasm'...i don't know if i can't handle this anyhmore....but,I do not know what else to do. MY MD's now want to put me in hosptial but that's just for 'weight loss"...I DO NOT UNDERSTAND HOW YOU CAN NOT EAT/DRINK/BE ON POWERFUL PAIN MEDICATIONS (through the skin fentanyl patchs) and wake up w/erection w/an urge that never goes away sometimes for weeks, and even when I put myself through the rigors of narocotic withdrawl; I don't even have a orgasm...and even if I do, the desire "comes RIGHT BACK", as if I never had it"...the last time i had one, I've felt so congested in my pelvis, I've lost 100% my ability to urinate...and cathing yourself is HORIRBLE under the best circumstance...but under thedesire of sex? It's enough to...I can't go on. Because who's going to read this...who's going to help?

I admit I've seen 3 urologists and several ER appt's and they treated me as a PSYCHO...tell me, how come and I live in NYC, NOBODY KNOWS ABOUT THIS SYNDROME...I, a layman...have seen it on TV lately, as one founder has recently died
PLEASE ANY MALE THAT HAS ANY WAY TO HANDLE THIS (I read that NYQUIL) helps in both women and men, yet, the entire article only talks about women). THe only person that studies men is in NEW ZEALAND and I can't figure out the digits, $5 per minute?
I need help NOW, I NO LONGER KNOW HOW TO LIVE (a college grad, going for MSW at QC, MagmaCumLade....Please write.