Jen26

I am 22 years old and I have Primary Amenorrhea as well. I was diagnosed when I was 17 years old but of course I got the same reaction as most of you did from your doctor and the solution was....Birth Control. I stayed on Diane 35 for 2 years, gained a ton of weight (was 97 pounds then up to 130) and had the biggest mood swings. While I was on B.C I was getting regular periods but when I went off it they would come but only once or twice a year and sometimes for longer than a month. I was again concerned so I went back to the doctor who now decided that blood tests were in order. Everything came back clear and he said B.C was the best answer. I was 20 and now 2 years have gone by and I'm still experiencing the same problem, no periods. I have a new doctor now who thinks this is serious and needs to be diagnosed; especially in case it's affecting my eggs and therefore freezing them might be a viable option. All the tests are happening within the next month but with a doctor being so blunt about the problem it scares me. Have any of you had a Pelvic Exam done? It's good to know that we're not alone...although we are certainly in the minority.

Hello All members of this group!
After care full reading of the views posted by this group members, I came to conclusion that you all are not treated properly, Doctors till now are not guiding you corerectly. This all I am telling you from my experience of last 30 years, as I have treated successfully lots of patients of such problem. So here I want to clear you all about the fact which is missing in your cases.
1. Taking Birth control pills will never solve the problem yet it will necessarily aggravate the situation. This should be very clearly understood.
2. There may be several factors on which the situation depends, In any such patient there may one or more cause behind the problem.
3. Hormonal (Replacement therapy) generally will not cure the problem finally.
4. There may be any developmental deffect too in such cases.
5. Some times Obesity may be the one factor behind it.
6. Any type of masculinizing tumor in the uterus or overy may also be the cause of the problem.
7. Some times there is all correct & all the tests are naormal showing but there is a problem which the patient feels.

Any way whatever the problem is after careful consideration one should proceed further in managing for the treatment of the situation.
I have treated so many patients of this type and by chance generally in maximum cases Allmighty GOD gave me success.
One time was also there when one patien came to me for having primary Amenorrhoea and was previously treated by several doctors. I do not know why any Doctor made her Ultrasound, That was lacking in all that. I have suggested her to get an Ultrasound of lower abdomen, She have done, And I saw the real cause, The Uterus was rudimentary showing just like a line only, It was the developmental deffect, So I have clearly told her that there is no chance for you, I am extremely sorry for that.
She and her husband had forced me to do something, I said what can I do when GOD had done nothing for you in this regard.
They Importuned (pressed) me for doing something for them.
I had told them OK I will think positively in this regard, But I think My answer will be lastly no.
They told that please think properly and we will contact you after 2 or 3 days.
By Chance I got a medicine name for which it was not claimed to do anything for that case, I told them on their phone I will prepare an Ayurvedic medicine for you if you will say, but I do not claiming that it will do anything for you.
They told me OK make it.
I have prepared that, and got Tremndous result by that only in approx. 40 days, She had got menstruation for 4 days and on doing Ultrasound test again there was a proper Uterus. I could not be able to think, how it happened, It was a mirracle only for me too.
Ok
If you all feel that Mine views may help you then it will be my pleasure for making happy to anyone in their life.
You may contact me throgh my website http://www.ayucorps.com
Or on phone 09810308812

hi bc222

I have had many pap smears and they come back normal. ive had an ultra sounds of my uteris and ovaries and they are small. i just had a ultra sound of my abdomen and everything came back normal. I have also had a mri of my Pituitary gland and they found a cyst on my sphenoid sinus and i had surgery to have that drained. Ive seriously have had sooo many tests but im not going to name them all for you. its nice talking to someone who understands.

(FYI I accidently wrote osteopathy in my last reply but i ment osteopenia!!!)

I am so glad to see I am not the only one with this problem. Just like everyone, I was put on a birth control pill and finally was able to have my first period when I was 24. When I was 15 and wasn't starting my periods, I went through numerous bloodtests, mri, ultrasounds and was just marked off by saying i'll never have kids since I don't have a uterus. 9 years later after I fell in love with my now husband, I went back to the docs to see what my chances were of getting pregnant. (I was so hurt that I refused to go to the doctors for 9 years because I had lost hope of ever being able to have kids) I went through numerous tests all over again and this time a small uterus did show up in my ultra sound along with a dermoid cyst in my left ovary. My doctor prescribed Alesse (a birth control pill) and I finally got my period for the first time. Boy was I happy to see my first period. Im not gonna lie, I was so happy. Finally felt like a woman! Ive been on the pill for 2 years now and finally stopped taking it because my husband and I are very hopeful we'll get pregnant. Im seeing my gyne in 2 weeks to see what my chances are. Has anybody gotten pregnant yet?