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 Annie0909 (Guest)
My mother had Caffey disease, I did when I was a child, and now my baby boy also has it. I am very interested to share experiences with other patients...
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Replied on Monday, December 29, 2008 12:00 AM
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please let me know the treatment and the time period you all have taken to recover,as my 4 month old baby girl is also suffering from caffeys and her symptoms are very severe.please help me.....
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Replied on Friday, October 16, 2009 12:00 AM
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Guest
Similar experience-your son is over a year now,how is he getting on?
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Replied on Friday, January 29, 2010 12:00 AM
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MY BABY BOY IS HAVING CAFFEY DISEASE, NO FAMILY HISTORY OF CAFFERY, HIS BLOOD TEST SHOWS HIGH HEMOGLOBIN, HIGH PLATELES AND GOANT TROMBOCIATES CELL, HE IS NOW 15 MONTHS, RIGHT RIB , MANDIBLE AND MAXILLE SWELLING, THE SWELLINGIS ALMOST NEARLY ONE YEAR. WHAT TREATMENT DID U GIVE YOUR CHILD
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Replied on Sunday, January 25, 2009 12:00 AM
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MY BABY GIRL IS CONFIRMED WITH CAFFEYS DISEASE,SHOCKING IS NO FAMILY HISTORY DRS SAYS ITS A GENETIC DISEASE AND BABY IS 3 MONTH OLD IS THERE ANY TREATMENT..........
SAYED ASLAM
HUBLI.
INDIA
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Replied on Thursday, September 24, 2009 12:00 AM
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Its been 4 months ever since my daughter confirmed with Caffeys,she is on naproxen but no signs of improvement her body weight remains the same ever since her birth,her platelet count is more than 9.50 due to which drs are not giving even steroids which may further worsen her condition.she is been through severe pain and fever due to which she hardly sleeps.
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Replied on Wednesday, October 28, 2009 12:00 AM
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my baby sarah fought brilliantly against all odds but she could not tolerate the hospitalized infection(septicemia)and died on 8th nov 09.she was admitted for caffeys symptoms but got infected,drs says this that,but i would say one thing before admission drs should know the patient or else why they have admitted my kid,simply to study the case or they dont want to loose study material.end of the day i have lost my darling.
Sayed Aslam
Hubli
india
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Replied on Friday, November 13, 2009 12:00 AM
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