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Infantile Cortical Hyperostosis / Caffey-Silverman disease
Posted in Infantile Cortical Hyperostosis / Caffey-Silverman disease Support group on Fri, 16 Oct 2009
please let me know the treatment and the time period you all have taken to recover,as my 4 month old baby girl is also suffering from caffeys and her symptoms are very severe.please help me.....
Posted in Infantile Cortical Hyperostosis / Caffey-Silverman disease Support group on Fri, 13 Nov 2009
my baby sarah fought brilliantly against all odds but she could not tolerate the hospitalized infection(septicemia)and died on 8th nov 09.she was admitted for caffeys symptoms but got infected,drs say...
Posted in Infantile Cortical Hyperostosis / Caffey-Silverman disease Support group on Wed, 28 Oct 2009
Its been 4 months ever since my daughter confirmed with Caffeys,she is on naproxen but no signs of improvement her body weight remains the same ever since her birth,her platelet count is more than 9.5...
Posted in Infantile Cortical Hyperostosis / Caffey-Silverman disease Support group on Thu, 24 Sep 2009
MY BABY GIRL IS CONFIRMED WITH CAFFEYS DISEASE,SHOCKING IS NO FAMILY HISTORY DRS SAYS ITS A GENETIC DISEASE AND BABY IS 3 MONTH OLD IS THERE ANY TREATMENT..........SAYED ASLAMHUBLI.INDIA
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