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I was diagnosed with CML over 23 years ago and even now doctors are gutless and spineless. This comment above "it is near-impossible for the doctor to give a correct estimate of the prognosis." The key word here is "estimate." Of course they can but they will not. I had a bone marrow transplant more than 6 years after diagnosis and during those 6 years no doctor would give me any clue about my prognosis. I was at M.D. Andersen Cancer Center in Houston and I saw many many doctors who would not say a word.
And your comment regarding BMTs is a bit off. Back in 1995 the survival rate of BMTs was less than 10%. How do I know? I saw it with my own eyes. A BMT is nothing more and nothing less than the doctors killing you and then they try to revive you. They are not too successful at it. May it is better now, but I would think not because from what I saw the doctors do not care about your health post BMT. I have had some very serious problems but all they could say is, "you're alive." I believe the media and the public word is misleading CML patients. Although, I had a BMT the CML is still with me. I have read many places where they state, "BMT cures patients." If this is the case, why do I still have it? CML Prognosis - fact or fiction?
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Replied on Wednesday, March 14, 2012 4:12 AM
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(Guest)
I have CML, my numbers aren't very good right now, if I could survive 23 years after diagnosis I would be so grateful, not clear about why you are complaining? Thanks
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Replied on Monday, October 6, 2014 10:35 PM
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