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Hello ,
My name is Svetlana Churyumova, 27 years old now and have been suffering from muscular dystrophy since I was 3 years old. So I have had it for 24 years years now and feel it is getting worse. I am using an electric wheelchair and I have had medical help fpr only 8 years. I want to try out medication that would help me feel better. Please write to me if there is any medication or operation that can help me.
Thank you so much for any help.
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Replied on Thursday, June 17, 2010 10:34 PM
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Hi Svetlana,
I am Shilpin and feel sorry about your disease. My cousin is suffering from the same problem since the last 4 years. You said that this disease was detected when you were 3 years and you have had medical help for about 8 years now. Does it mean you took nothing for 16 years after the disease was detected? Kindly clarify this point because my cousin is deteriorating even though he has been taking medical help for about 4 years now.
Regards,
Shilpin
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Replied on Monday, June 21, 2010 12:46 PM
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I am Nitin Kundamangal From Nanded [Maharashtra]and am a patient of muscular dystrophy.
Please reply me positive reply.
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Replied on Wednesday, June 23, 2010 10:30 AM
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 Deepika11 (Guest)
Me deepika [patiala] n my husband is sufering from muscular dystrophy n i want to know that if it had any treatment
please reply positive
thanks.
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Replied on Monday, July 12, 2010 12:31 PM
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sam_jvs (Guest)
Hello my dear friends, i am sam from malaysia i am doing a deep research on muscular dystophy how we can repair our DNA and Gene.
To all my dear friends pls don't lose hope.
May god bless you all.
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Replied on Sunday, July 18, 2010 12:42 PM
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myself chandan kumar from patna,suffering from muscular dystrophy[LGMD].I am 20 yrs old.sir, please kindly suggest me for curing of this particular disease as there is no any further remedy for this disease.
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Replied on Saturday, July 31, 2010 11:28 PM
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mahmudrjoel (Guest)
hallo sam from malaysia. am joel in kenya running a non-profit HECI[search facebook] and working in conjunction with an organisation called MuDAK(Muscular Dystrophy Association of Kenya). interested in your research please keep in touch about the latest treatments/progress. Thanks in advance
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Replied on Monday, August 23, 2010 6:29 AM
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sunri (Guest)
hi my name is sandeep i am from gujarat i am 27 years old i am suffring from masculer distrophy last 15 years but since i was 10 yers old please any trtment suggested andplease any tretmet stem cells and gen tharpy please contect me
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Replied on Tuesday, July 20, 2010 1:38 AM
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My Name is Ramesh Rathod I From Surat Gujrat May son also suffering form Masculer dystrophy hi 10 year old pl. give guide me how how trited him.
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Replied on Wednesday, July 21, 2010 4:46 AM
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