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Fibrous dysplasia of the bone

Fibrous dysplasia causes bone thinning and tumor-like, fibrous growth on the bones. When this happens on the face or head, it causes visible deformities. Scientists do not yet know what causes it, and there is no cure for the condition so far.

This online support group for fibrous dysplasia will help you find fellow-travelers on what can be a lonely journey - meet other patients, their families, and doctors and find a compassionate online community for your disorder.

 

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Fibrous dysplasia of the bone

Fibrous dysplasia (FD) of the bone is a peculiar condition that affects either all bones or a single bone in the body. Most cases are diagnosed in adolescence and young adulthood and remain unchanged throughout life. The initial manifestations of fibrous dysplasia are most commonly...Read More

Posted on : Friday, March 12, 2010 12:00 AM
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sarajane
(Guest)
I was diagnosed with FD of the skull when I was 9. I am now 25, and since then I have had 4 cranioplasty's. My FD was surrounding my optic nerve and could have caused blindness. After my first 2 surgeries my FD started growing in a different direction..towards my brain. It has been a very long road and alot of suffering for my family and I. I have another appointment in 2 weeks and I feel the outcome may require yet another surgery. I pray for all who suffer with this illness.
Replied on Saturday, November 19, 2011 11:21 AM
Chandan agarwal I am diagnosed with fd in right hand below elbow and left feet below knee.i am 29 and i dont know what to do.there is no specific information on why it happens and how long treatment take.i wonder is there any treatment at all??
Replied on Monday, September 24, 2012 1:40 AM
I am 31 and was diagnosed with FD when I am 2years old in my full body. Fracture was repeated at the time of a child. A stress fracture was carried out recently and the wire was put into the thigh. I would like to exchange information.
Replied on Tuesday, November 6, 2012 5:02 PM
Hi my sister suffers from this condition,i ve not kept well for years and have been told i have fibro myalgia are the 2 conditions linked in any way,i also have thyroid prob and hav recently had vaginal bleeding,im in alot of pain in most of my joints.
Replied on Sunday, November 25, 2012 4:54 AM
I was diagnosed with fd when i was 13. I haven't had any real treatment in what's wrong with me. Im 21 now and in constant agony my hips my ankles legs back everywhere i broke my jaw and right femur i have a very large head to but have only had fd diagnosed in hip. Im waiting to see another hospital as i feel i have been neglected. I can't walk far without being in agony and don't get slot of sleep. Was wondering if anyone could relate to me and wanted to know if we are entitled to disability as working cause to much pain. Also it is nice reading these comments knowing im not the only one in agony. Xx
Replied on Wednesday, January 16, 2013 3:28 PM
 




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