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jyotshana.kumari (Guest)
My name is Jyotshna. I am 23 years unmarried girl, suffering from S.L.E, Which was detected by S.G.P.G.I, Lucknow. I am taking Wysalone-5mg daily with H.C.Q.S. My growth is not proper.I feel pains and weakness in joints. Is there any permanent treatment for this disease? If possible, please advice me.
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Replied on Saturday, April 17, 2010 12:00 AM
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Hi Jyotsna,
You may be needing immunosupprasent as well.Which kind of SLE you have?Consult a nephrologist soon
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Replied on Thursday, March 3, 2011 6:13 AM
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mark76 (Guest)
my name is mark I am 14 years old I have been diagnoses with SLE I am always in pain but its like no one even cares its life and i have to deal with it just wanted to put that out there i am always stress how can i prevent that? anyone?
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Replied on Tuesday, May 22, 2012 10:57 PM
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http://www.arunachala-ramana.org/doctor_manickam.htm
try the medicine by this doctor.
Karthik
chennai
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Replied on Saturday, July 28, 2012 6:33 AM
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Wendie (Guest)
hey Mark,my name is Wendy and I was diagnosed with SLE when I was 16 years old. But before that,I went through a lot of suffering...pain,not knowing what was wrong nd I understand ur situation nd how U feel.There isn't much U can do about the pain other than learn how to manage it but most important,have a positive attitude,accept that U have it nd talk to those close to U to let them know how U feel as a support system is essential.But remember U are not alone nd have faith.
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Replied on Monday, September 10, 2012 12:31 PM
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John_123 (Guest)
My sister is recently detected with LUPUS SLE , her age is around 31 years .Doctor told us that it will be a long treatment . But all of us are wondering how long it will be . Please tell me is there any chance of complete cure or if it is controlled then can the person live a normal life ??? Also is there any NGO in India for any help.
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Replied on Tuesday, February 25, 2014 7:58 AM
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My Sister is suffering from SLE. She is 12 years old and her kidney organ is also affected. How long should we take the treatment [doctor have informed that we have to give high dosage medicines initially]. How many years does it take to settle and is there a treatment available now?
Is there a NGO to support financially for this disease?
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Replied on Wednesday, June 27, 2018 5:02 AM
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