| |
 missladybug007 (Guest)
Jan 1/11 marked my 8th post ARDS birthday and I still suffer from a relentless form of chronic pain that cannot be explained and I've been following other victims of ARDS and they too suffer similar pain disorders, for example, 5 -8 days/month I feel a bruised head sensation for no reason, I can barely comb my hair; I have trouble climbing stairs and although I lost 65 lbs hoping it would improve it has not. This trauma caused me to have fibromyalgia, but it doesn't explain all the pain and I believe someone should catalogue these post ARDS pains, I believe there is a Post ARDS pain syndrome and if studied, perhaps treatment for us could help lower the health costs and increase our dignity. Thank you, Monique Levesque
|
|
Replied on Wednesday, April 20, 2011 3:04 PM
|
|
|
|
nana68 (Guest)
I have weakness and spacicity and have found out I have brain lesions I was wondering if you have had an mri..trying to find someone with a similar experience.
|
|
Replied on Friday, March 29, 2013 9:23 AM
|
|
|
|
|
I survived ARDS in 2000, and 10.5 years later I continue to struggle with my health. I've had varying levels of energy through the years, but I've had a difficult time with weight loss and exercise. I'm constantly going on steroids for asthma, bronchitis, and pneumonia. I have severe sleep apnea. I've suffered from depression as well, and still have nightmares and flashbacks of my ICU psychosis. If you'd like to read more about my experience, I've recently posted it on my blog.
http://www.cuteculturechick.com/tag/ards/
|
|
Replied on Friday, April 22, 2011 3:37 PM
|
|
|
|
|
I am a 39 [40 in a few weeks] male, had ARDS in March/April of 2010, spent about 12 days in a coma on a oscillating vent, and another two weeks in the hospital (ICU 1 week, step-down ICU the last week), went right home and had in-home rehab, then to a physical therpy place a couple times a week. By October I was feeling great, back to myself. I feel 100% in shape, no problems at all. Back to firefighting/EMS, and being very active. So, it's not all bad!
|
|
Replied on Monday, June 27, 2011 9:21 PM
|
|
|
|
| |