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Zully - Discussions
Total Posts : 5

 

Achondroplasia

Posted in Achondroplasia Support group on Sat, 23 Jan 2010

Thanks very much for share this info.We will pray for your son, I hope everything will go find with him. We are from Mexico

Achondroplasia

Posted in Achondroplasia Support group on Sat, 23 Jan 2010

Hi Phil, sure I will let you know, I will contact the doctor in Spain, I know everything is runnig good, but not as far as we want... my baby is now 14 months and she walks perfect and run for all the...

Achondroplasia

Posted in Achondroplasia Support group on Sat, 23 Jan 2010

Hi Phil, sorry did not see the message until now. How old is your baby?. For this moment I did not contact yet the doctor in Spain, I will write to him today, to see whats new, I know that everything ...

Achondroplasia

Posted in Achondroplasia Support group on Tue, 13 Oct 2009

Hi Laureen, I know Dr Jesus Pintor in Spain he probably know everything you need, he is very friendly and english speaker. Look for him at Complutense University, he will answer, tell him that I give ...

Achondroplasia

Posted in Achondroplasia Support group on Wed, 15 Jul 2009

Do you know that achondroplasia is now on a very good research to find a pharmaceutical treatment that will improve growth specially in large bones?, this will make the bones growth normally. Since 20...


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