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Posted in Primary Amenorrhea Support group on Wed, 21 Apr 2010

Thanks so much Niki68, for your words of encouragement, it means a lot coming from someone who understands this condition.

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Posted in Primary Amenorrhea Support group on Mon, 22 Feb 2010

To sjackson and jen26, :I also sometimes have a hard time with lubrication, but not all the time. I'm short (just 5' even) and petite and have a bra size of 34 double D, so boob size has nothing to d...

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Posted in Primary Amenorrhea Support group on Thu, 18 Feb 2010

"hopeful2bepreg", You have given me a new outlook on my situation. Yes, I have been married for 2 yrs now. It's especially difficult when you are married and people expect you to have kids right away,...

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Posted in Primary Amenorrhea Support group on Thu, 18 Feb 2010

To "hopeful2bepreg"I want to say thank you for sharing your story. I was told the same thing that my uterus is absent. I've only gone to one doctor and she wanted me to continue with some testing but...

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Posted in Primary Amenorrhea Support group on Mon, 23 Nov 2009

To My charms, I know exactly what you mean. People think we are weird and it is even harder when you go to the doctor. I went to the ER the other night because I had really bad flu symptoms and it was...

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Posted in Primary Amenorrhea Support group on Tue, 10 Nov 2009

Hi kiersmomg1 Please tell what are the things you've experienced because of this condition. I'm just curious because i have never met anyone with primary amnorrhea. I know you feel like you are the o...

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Posted in Primary Amenorrhea Support group on Tue, 20 Oct 2009

Hi, I'm 26 years old and I've also been diagnosed with primary amnorrhea. I thought I might be the only women in the world going through this and have never met anyone with the same condition. My doct...