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Asked by : biplab on Sat, 24 Jul 2010
Asked in :Muscular Dystrophy / Duchenne Muscular Dystrophy
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My son is suffering from Duchennes muscular dystrophy. He is 11 years old & lost mobility of his lower limbs. Mobility of upperlimbs has also become restricted. I have give hi stem cell therapy at AIIMS, ND. He has been injected with stem cells collected from himself 4 times. It did not give any long term result. He is being given physiotherapy everyday. Has any treatment come to India like gene replacement/repair theapy. Is there any other mode of treatment?

Answered by : anzad on Wed, 01 Sep 2010

I m really sorry to say that as far aa i know there is no further development and treatment available in india for your son.i hope things change in the very future. i think you might be more informed about the same than me , but let me give you some links which are latest guidelines about DMD.1)http://quest.mda.org/files/pdfs/Part_Two-newDMD.pdf
2)http://quest.mda.org/files/pdfs/Part_1-newDMD.pdf
hope it is of some use to you.I think research centres like AIIMS will only get information on new trestments or trials for DMD like diseases. So please keep in touch your sons doctor there to know more.only information i can share is that Antisenseoligonucleotidetherapies are in the pipeline for DMD, but may take a while to reach our country. Sorry i couldnt be of much help to you on this. convey my love and regards to your son. take care

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Answered By :

Dr. Anzad Madathil Amanullah

Paediatrics

Total Answered : ( 54 )

Working as Pediatrician in Department of Health Services , Ministry of Health, Governement of Kerala.
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Dr. Anzad Madathil Amanullah