Ask An Expert

Asked by : biplab on Sat, 24 Jul 2010
Asked in :Muscular Dystrophy / Duchenne Muscular Dystrophy
Comments (0) No Of Views (2108)

Member SignIn
Please login to rate

Email
Password


Forgot Password? Sign up now

1 rating

My son is suffering from Duchennes muscular dystrophy. He is 11 years old & lost mobility of his lower limbs. Mobility of upperlimbs has also become restricted. I have give hi stem cell therapy at AIIMS, ND. He has been injected with stem cells collected from himself 4 times. It did not give any long term result. He is being given physiotherapy everyday. Has any treatment come to India like gene replacement/repair theapy. Is there any other mode of treatment?

Answered by : anzad on Wed, 01 Sep 2010

I m really sorry to say that as far aa i know there is no further development and treatment available in india for your son.i hope things change in the very future. i think you might be more informed about the same than me , but let me give you some links which are latest guidelines about DMD.1)http://quest.mda.org/files/pdfs/Part_Two-newDMD.pdf
2)http://quest.mda.org/files/pdfs/Part_1-newDMD.pdf
hope it is of some use to you.I think research centres like AIIMS will only get information on new trestments or trials for DMD like diseases. So please keep in touch your sons doctor there to know more.only information i can share is that Antisenseoligonucleotidetherapies are in the pipeline for DMD, but may take a while to reach our country. Sorry i couldnt be of much help to you on this. convey my love and regards to your son. take care

Post Your Comments

This is an open forum for the public. Please follow our Community Guidelines when posting any material. You are welcome to be critical or controversial, but avoid getting personal, abusive or offensive and try to keep your postings brief. All postings are being constantly reviewed for spam and irrelevant material (such as product advertisement or personal advertisements). Any posting that does not conform to our policy and 'Terms of Use' are deleted.
Remember threads are for only feedback and discussion. We will not use this material for publishing papers or advertisements.
You need to be registered with Medwonders to post any item. If you are a New User please register. You will be re-directed back to this page.

0 Comment(s)

Be the first to comment

Member SignIn
Please login to post your comment.

Email

Password



Forgot Password? Sign up now

Member Sign In

Password

Remember me

Forgot Password?
Sign up now

Answered By :

Dr. Anzad Madathil Amanullah

Paediatrics

Total Answered : ( 54 )

Working as Pediatrician in Department of Health Services , Ministry of Health, Governement of Kerala.
Read More

Support Groups Q-A

View All »

Allergies & Immunity (13) »

•	Allergy (6)
•	Common Cold (6)
•	Shingles / Herpes Zoster / Post Herpetic Neuralgia / Chicken pox shingles (1)

Alternative Medicine (8) »

•	Ayurveda (2)
•	Homeopathy (2)
•	Yoga and Lifestyle (4)

Brain & nervous system (31) »

•	Alzheimer's Disease (1)
•	Bell's Palsy (1)
•	Dyslexia (2)
•	Febrile Fits / Febrile Convulsions (3)
•	Fits/Epilepsy/Convulsions (11)
•	Headache / Cephalgia (5)
•	Leprosy (1)
•	Migraine (3)
•	Others (4)

Cancers (19) »

•	Acute Lymphoblastic Leukemia (1)
•	Acute Myeloid Leukemia (2)
•	Bone Marrow Biopsy (1)
•	Breast Biopsy (1)
•	Colo-rectal Cancer - Management (1)
•	Cysts and Tumours (1)
•	Endometrial Cancer (1)
•	Gastric Cancer / Cancer Of The Stomach (5)
•	Leukemia (1)
•	Liver Biopsy (1)
•	Liver Cancer (1)
•	Others (1)
•	Ovarian Cancer / Cancer of Ovary (1)
•	Polycystic Ovarian Syndrome / Polycystic ovary disease (1)

Children’s health & parenting (10) »

•	Others (10)

Dental Health (4) »

•	Others (1)
•	Tongue Abnormalities / Developmental Disturbances of the Tongue (1)
•	Tooth Decay (1)
•	Tooth Discoloration (1)

Diet & nutrition (49) »

•	Calcium and Vitamin Supplements (2)
•	Diabetic Diet / Torture or Not (4)
•	Diet and High Blood Pressure (1)
•	Diet Pills (22)
•	Diet, Lifestyle and Heart Disease (5)
•	Ideal Body Weight - A Massive Issue (9)
•	Others (3)
•	Vitamin Supplements (2)
•	Why Do We Eat - Nutrition Facts (1)

Ear, Nose & Mouth (10) »

•	Cold Sores/ Fever Blisters / Recurrent Herpes Labialis (1)
•	Mouth Ulcers (2)
•	Nose Bleed / Epistaxis (1)
•	Others (5)
•	Vertigo (1)

Endocrine System (26) »

•	Diabetes - Essentials (18)
•	Diabetes - Self-Monitoring of Blood Glucose (SMBG) (2)
•	Hyperthyroidism / Thyroiditis / Graves Disease (1)
•	Hypothyroidism / Myxoedema (5)

Gastrointestinal System (72) »

•	Alcoholic Liver Disease (1)
•	Appendicitis (1)
•	Constipation (5)
•	GERD (2)
•	Hiatus Hernia (1)
•	Others (38)
•	Pancreatitis (3)
•	Piles / Hemorrhoids (16)
•	Ulcerative Colitis (5)

Genetic & Metabolic (21) »

•	Attention Deficit Hyperactivity Disorder (ADHD) (2)
•	Down syndrome / Birth Defects - Genetic (12)
•	Genetic Counseling (1)
•	Klinefelter's Syndrome (1)
•	Muscular Dystrophy / Duchenne Muscular Dystrophy (3)
•	Psoriasis (2)

Healthcare Industry & Policy (10) »

•	Health Insurance (7)
•	Medical Job (2)
•	Medico Legal (1)

Heart, Blood & Circulatory System (44) »

•	Anemia / Low Haemoglobin (2)
•	Blood Donation (1)
•	Blood Group (5)
•	Cardiac Catheterization / Coronary Angiogram (1)
•	Congenital Heart Disease – Septal Defects (2)
•	Heart Attack (1)
•	High Cholesterol / Hypercholesterolemia (3)
•	Hypertension / High Blood Pressure (21)
•	Mitral Valve Stenosis And Mitral Valve Replacement (1)
•	Others (3)
•	Palpitations And Arrhythmias (3)
•	Thalassemia (1)

Infectious Diseases (19) »

•	Amoebic Dysentery / Amoebiasis (1)
•	Chikungunya (5)
•	Chronic Fatigue Syndrome (1)
•	Dengue / Dengue Hemorrhagic Fever / Dengue Shock Syndrome (5)
•	Filaria (3)
•	Hepatitis B (1)
•	Malaria (2)
•	Typhoid and Paratyphoid Enteric Fevers (1)

Kidney & bladder (9) »

•	Bedwetting / Enuresis (1)
•	Gallstones (1)
•	Kidney Stones/Renal Stones (2)
•	Kidney Transplantation (1)
•	Others (4)

Lungs & Respiration (20) »

•	Health Hazards of Smoking Cigarettes (1)
•	Lung Cancer (2)
•	Others (3)
•	Respiratory Diseases (2)
•	Smoking And Tobacco (4)
•	Tuberculosis / Pulmonary Tuberculosis / Lung Tuberculosis / TB (8)

Men’s health (108) »

•	Andropause / Male Menopause (1)
•	Drugs In Impotence (1)
•	Hair Loss (18)
•	Hydrocele (2)
•	Impotence / Erectile Dysfunction (27)
•	Others (39)
•	Phimosis/Circumcision (1)
•	Premature Ejaculation / PE (17)
•	Priapism (2)

Mental health & addiction (104) »

•	Adolescent Depression (1)
•	Alcohol abuse / Alcohol dependence / Alcoholism (2)
•	Anorexia Nervosa (1)
•	Anxiety Disorder (3)
•	Binge Eating : The Pleasure and Pain (1)
•	Depression (6)
•	Hypersomnia / Excessive Sleepiness Disorder / Idiopathic Hypersomnia (2)
•	Others (5)
•	Phobias (1)
•	Psychoactive Substances/ Substance Abuse / Drug Abuse (1)
•	Psychological Changes In Pregnancy (1)
•	Schizophrenia (3)
•	Sexual Deviance (66)
•	Sleep Disorder (6)
•	Sleep Disorder: Insomnia (1)
•	Sleep Disorder: Narcolepsy (1)
•	Stress Incontinence - Management (2)
•	Suicide (1)

Miscellaneous (72) »

•	General (72)

Muscles & Bones (11) »

•	Back Pain (4)
•	Lifestyle And Osteoporosis (1)
•	Osteoarthritis / Osteoarthrosis / Degenerative Disease (1)
•	Others (4)
•	Spondylosis (1)

Relationships & Sexuality (5) »

•	AIDS/HIV - Common Opportunistic Infections (1)
•	AIDS/HIV - Prevention And Transmission (2)
•	Others (2)

Senior health (25) »

•	Obesity (25)

Skin & Hair (38) »

•	Acne / Pimples / Zits (17)
•	Heat Stroke (1)
•	Others (2)
•	Skin Cancer (1)
•	Skin Disease or Dermatology - Overview (14)
•	Skin Disorder / Dry Skin / Xerosis (3)

Teens (36) »

•	AIDS/HIV (17)
•	AIDS/HIV - Lab Tests and FAQs (1)
•	Oral Health: The First Reflector of AIDS (1)
•	Sex Education For Teens (17)

Trauma & Injuries (3) »

•	Accident and Trauma Care (3)

Vision Center (19) »

•	Amblyopia / Lazy Eye (2)
•	Astigmatism (1)
•	Conjunctivitis / Pink Eye (2)
•	Corneal Ulcer (1)
•	Diabetic Retinopathy (1)
•	Lasik Eye Surgery (1)
•	Myopia/Short Sightedness (2)
•	Others (9)

Women’s health (76) »

•	Birth Control Pills (6)
•	Breast Feeding and Problems (6)
•	Dysmenorrhea / Painful Menstruation / Menstrual Pain (1)
•	Ectopic Pregnancy (1)
•	Endometriosis (3)
•	Female Sexual Dysfunction (2)
•	Gestational Diabetes (1)
•	Gonorrhea / Clap (1)
•	Hot Flash (2)
•	Infertility (3)
•	Labor and Delivery / Pregnancy Labor (1)
•	Menopause (1)
•	Others (12)
•	Ovulation (4)
•	Pregnancy (23)
•	Pregnancy - Exercises and Massages (1)
•	Pregnancy and Complications / Complications of Pregnancy (4)
•	Pregnancy And Diet / Diet During Pregnancy (1)
•	Urinary Tract Infection (1)
•	Vaginitis / Vaginal Infections (2)

Ask An Expert

Member SignIn

Member SignIn

Member Sign In

Dr. Anzad Madathil Amanullah