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to whom it may concern... I am a 20 year old servivor of MPGN. i was diagnosed at 4 and have now been in remission for 4 years. ive never had a transplant, and although i was very close to it ive never been on dialysis.
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Replied on Monday, July 7, 2008 12:00 AM
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Hi bree. Glad to hear you are a survivor of MPGN. I am from ireland and my brothers little girl took this disease 9 weeks ago. She is on dialayis ever day and we are very concerned for her. I would be greatly obliged and grateful to hear the full story of your experiences and any advice you could offer me. Thankyou for you time and take care, colin
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Replied on Thursday, August 21, 2008 12:00 AM
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it all started with a persistant cold.. after about two months of an upper respertory infection my mom found me lethargic on the floor.. my urine was black it was mpgn type 2.
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Replied on Thursday, February 4, 2010 12:00 AM
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 Guest
Hi Bree! My daughter was diagnosed with MPGN type 1 in 2004, she continues to have problems with anemia, seems to be getting worse. Just wondering if you had the same problem?
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Replied on Monday, April 6, 2009 12:00 AM
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Tamara Harchanko (Guest)
my stepmom has minimal change disease- she also has rhem.arthritis- last week relapsed into MCD- her ankles are swolen to painful- Is there anybody who knows what foods are for her to eat???? She also suffers from celiac and is under 100 lbs- Please help!!
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Replied on Thursday, November 13, 2008 12:00 AM
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i was diagnosed with mpgn type 2 at 4 yrs old... it all started with a persistant cold. My mom always thought i was pale but, she had no idea until she found me lethargic on the floor.. my blood pressure was sky high. my urine was black. my 14 yr treatment consisted of aggressive doses of prednisone and blood pressure medication. i also give all the credit in the world to the doctors and staff at the Motts childrens hospital in ann arbor michigan.
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Replied on Thursday, February 4, 2010 12:00 AM
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