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Research Says Higher CCSVI Confirmed in MS, but Meaning is Unclear

New research on the relationship between multiple sclerosis (MS) and chronic cerebral venous insufficiency (CCSVI), a narrowing of the extracranial veins that restricts the normal outflow of blood from the brain, says that CCSVI may be a result of ...Read More

Posted on : Saturday, April 16, 2011 6:37 PM
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marylisa
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I am sick to death of all these doctors fighting about weather these blockages cause MS or they are a secondary condition associated with MS. My daughter is 24 years old and has RRMS. She has progressivly gone down in the last year. We went and had this CCSVI procedure done and she was given back her life. If we have to do this again we will. While you doctors fight about who is right and who is wrong, there are people out there fighting for their lives. If someones symptoms are not to life threatening or crippling then why would they risk the procedure, but if they have lost thought process, use of the legs, and one arm, what do they have to loose. My daughter told me if she died on the table it would be better to try than to die doing nothing. These people are in desperate shape that are trying this. My experience with neurologists is they are arrogant and cold. I have dealt with many trying to find her some help. Please start listening to the people and ask them if they are willing to try. Can't the study focus on relieving symptoms for desperate people. I know I am not a doctor, but I am a mother and my daughter is happy and healthier. I will do whatever it takes to keep her that way. lrking
Replied on Saturday, April 16, 2011 6:37 PM
 


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